by Naz Dana | Mar 15, 2018 | Rare Diseases |
On March 1, 2018, Perlara PBC and Global Genes hosted an event in honor of World Rare Disease Day. The first of two fireside chats featured four Bay Area biotech CEOs working on rare diseases, who shared their stories of how they came to ‘care about rare’. This was...
by Ethan Perlstein | Mar 8, 2017 | Perlara science |
This post is dedicated to World Rare Disease Day (WRDD) 2017. It was at the WRRD four years earlier when the value proposition for Perlara crystalized in my mind. I went to NIH that frosty last day of February in order to meet with patient advocates and ask them one...