Upcoming Events
2018 RARE Patient Advocacy Summit
October 3 – 4, 2018
Irvine, CA
The 2018 RARE Patient Advocacy Summit, organized and hosted by Global Genes, brings together rare disease patients, caregivers, advocates, scientists and academics, industry thought leaders, and medical professionals to learn, network, and collaborate.
Ethan Perlstein, Nina DiPrimio and Feba Sam will be attending
Mission: Cure & National Pancreas Foundation Fundraiser “Party for a Cure”
October 5, 2018
Los Angeles, CA
Mission: Cure partners with the National Pancreas Foundation to host a night of generosity and fun to help achieve the goal of finding a cure for the children and adults suffering from pancreatitis.
Ethan Perlstein will be attending
Read about Perlara’s plans to model pancreatitis in yeast as a part of the Pancreatitis PerlQuest partnership with Mission: Cure
Recaps
ML4 Family and Research Conference 2018 Recap
By Ethan Perlstein
Read Ethan’s recap of his experience at the Mucolipidosis Type IV Foundation’s ML4 Family and Research Conference 2018 in Atlanta, as well as an overview of Perlara’s work in developing ML4 worm and fly screens.
PMSF 2018 International Family Conference Recap
By Jessica Lao
Jessica recaps the Phelan-McDermid Syndrome Foundation (PMSF) 2018 International Family Conference in Dallas, where she met families from all over the world. With “United in Hope” as its theme, the conference united patients, advocates and researchers in hope for a cure.
Look for recaps of the UMDF Mitochondrial Medicine, Grace Science Foundation, and NNPDF’s 26th Annual Family Conferences on the Perlara blog in the coming weeks!
Industry at Large
16th International Conference on Batten Disease
September 12 – 16, 2018
London, UK
The Batten community convene an international scientific meeting every two years to share recent discoveries and advances for NCL disorders in order to support basic and clinical research and the development of new treatments.
Association for Glycogen Storage Disease 2018 Patient/Family/Medical Conference
September 21 – 22, 2018
Davenport, Iowa
The AGSD Conference is an annual meeting where those affected with glycogen storage diseases, their families, and medical professionals can connect with others to provide mutual support, gain a better understanding of the GSDs and their implications, and learn about the latest research findings and upcoming studies.
B Corp 2018 Champions Retreat
September 25 – 27, 2018
New Orleans, LA
Champions Retreat is the annual gathering of mission-driven leaders of the B Corp community focused on collective action and continuous improvement. Each year, hundreds of leaders gather for three days of meaningful collaboration, relationship building, and shared learning.
Like being in the know about Perlara team members’ whereabouts and life science industry events? Look for Perlara On the Go at the beginning of each month!
