Tag: patient advocacy

Perlara Events – July 2018

Perlara Events – July 2018

Last month, we launched Perlara On the Go, a monthly post updating you on upcoming events – be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Look...
Perlara Events – July 2018

Perlara Events – June 2018

Starting this month, we are going to use our blog to update you on upcoming events – be they conferences that Perlara team members are participating in, or events that may be of interest to the life sciences community at large. In addition, we will include...
2018 Parseghian Conference recap

2018 Parseghian Conference recap

I just attended the 2018 Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C (NPC) research. My mind is still spinning from all the productive interactions and conversations I had over three session-packed days at The Westin La Paloma...
Economies of Rare

Economies of Rare

Economies of scale are the efficiencies unlocked by large numbers. I’ve come to realize that the efficiencies of scale can emerge at the opposite extreme of rare – especially ultra-rare – genetic disease communities, which can number as few as dozens to thousands of...
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