Perlara in the news

Press Releases

Recent Articles

Yeast Models Of Phosphomannomutase 2 Deficiency, A Congenital Disorder Of Glycosylation

McKinney boy’s story moves Mark Cuban to invest in research targeting ultra-rare, fatal disease

Tweet leads Mark Cuban to invest in biotech company Perlara and quest to cure rare genetic disease

A rare-disease entrepreneur follows an unconventional drug development path

Notre Dame’s Warren Center for Drug Discovery collaborates with Perlara on screening platform for glycogen storage diseases

Yeast Models Of Phosphomannomutase 2 Deficiency, A Congenital Disorder Of Glycosylation

Cure Sanfilippo Foundation Partners with Perlara to Identify, Develop New Treatments

Doing it all – How Families are Reshaping Rare Disease Research

Perlquest model moves into academia as Perlara partners with Notre Dame

Perlara Enters Collaboration with the University of Notre Dame Focused on Cori Disease and Pompe Disease

Using fruit flies to find rare disease treatments

NGLY1 Deficiency disease modeling and drug screening

Perlara, Harvard, Undiagnosed Diseases Network to Research Neurodevelopmental Disorders

Perlara collaborates with Harvard/Undiagnosed Diseases Network

This start-up founder has a novel strategy for getting ahead: Telling the truth

NGLY1 Deficiency Drosophila model insights

‘Biotech rebel’: Here’s what it’s really like to raise money in Silicon Valley

Mark Cuban invests in Perlara

A Twitter-inspired fundraise

Advocacy Groups as Investors

Perlara signs pact with Grace Science and Wylder Nation Foundation

Young scientists ditch postdocs for biotech start-ups

Perlara signs rare disease pact with Novartis

YC-backed Perlstein Lab continues rare disease drug discovery

The Indie Scientist who vows to Leave no Mutation Behind

Nematodes and Your Compounds

Career Profiles–Into the wild

With $2M Seed, Perlstein Lab Tests Unorthodox Rare-Disease Plan

How a biotech startup juiced investors with yeast, flies and zebra fish

Perlstein Lab Raises $2 Million for Orphan Drug Discovery

Scientist’s Experiment in Fundraising

A Year Late: Indie Scientist, Ethan Perlstein

Scenes from the Postdocalypse

Lacking Funding, Some Scientists Turn to the Crowd

Podcasts

Interview with Ethan Perstein

Charting His Own Entrepeneurial Course: Ethan Perstein on The Long Run

Lessons from Pitching Venture Capitalists

Expanding the Potential of Crowdfunding

Ethan Perlstein: Scenes from the Postdocalypse

Upcoming Events

Previous Events

Biochemistry & Molecular Biology Seminar

November 19, 2018
Ethan Perlstein will be speaking

Wylder Nation Foundation’s 5th Annual Living Like a Warrior Gala

November 10, 2018

Second Annual “Chemical Biology in the HUB” Symposium

October 22, 2018
Ethan Perlstein presenting

Models for Accelerating Academic Rare Disease Research and Innovation: A Working Session Hosted by Notre Dame

October 11-12, 2018

Mission: Cure & National Pancreas Foundation Fundraiser “Party for a Cure”

October 5, 2018

2018 Rare Patient Advocacy Summit

October 3 – 4, 2018

Genetics Society of America (GSA) Yeast Genetics Meeting

August 22 – 26, 2018

#Yeast18

SLC13A5 Deficiency Research Roundtable

August 20, 2018

National Niemann-Pick Disease Foundation (NNPDF) family conference

August 2 – 5, 2018

The Phelan-McDermid Syndrome Foundation 2018 International Family Conference

July 19 – 20, 2018

Grace Science Foundation Conference

July 13 – 14, 2018

CE Aging 2018

June 28 – July 1st, 2018

UMDF Mitochondrial Medicine 2018

June 27 – 30, 2018

CE Neuro 2018

June 25 – 29, 2018

MLF Research Conference

June 24 – 26, 2018

Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research

2014 – 2018

Bay Area Worm Meeting

May, 2018

Biochemistry and Biophysics Research Seminar

April, 2018

Fireside Chats in honor of World Rare Disease Day 2018

March 1, 2018

2017 Rare Patient Advocacy Symposium

May, 2017

2016 Rare Patient Advocacy Symposium

May, 2016

2015 Rare Patient Advocacy Symposium

May, 2015

2014 Rare Patient Advocacy Symposium

May, 2014

2013 Rare Patient Advocacy Symposium

May, 2013

The latest from our Blog

Perlara Events – January 2019

by Naz Dana | January 3, 2019 | Business | 0 Comments

Last June, we launched Perlara On the Go, a monthly post updating you on upcoming events - be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Read on for...

Last month in tweets – November 2018

by Naz Dana | December 6, 2018 | Business | 0 Comments

Hello readers! Last month, we resurrected the old Perlara tradition of recapping the previous month through tweets. It's a monthly roundup of what happened at Perlara - new partnerships, staff news, events that Perlara team members attended, and anything else that was...

Perlara Events – December 2018

by Naz Dana | December 4, 2018 | Business | 0 Comments

In June, we launched Perlara On the Go, a monthly post updating you on upcoming events - be they conferences that Perlara team members are participating in, events that may be of interest to the life sciences community at large, or recaps of past events. Read on for...

2018 Global Genes Summit recap

by Feba Sam | November 15, 2018 | Rare Diseases | 0 Comments

In October, Ethan, Nina and I attended the 2018 Global Genes RARE Patient Advocacy Summit, held in Irvine, CA. This was the 7th annual gathering of rare disease patients, advocates, and researchers, and the largest gathering of the rare disease community worldwide....

Perlara Events – November 2018

by Naz Dana | November 5, 2018 | Business | 0 Comments

Last month in tweets – October 2018

by Naz Dana | November 1, 2018 | Business | 0 Comments

Hello readers! We’re resurrecting an old Perlara tradition of recapping the previous month through tweets. It'll be a monthly roundup of what happened at Perlara - new partnerships, staff news, events that Perlara team members attended, and anything else that was...

2018 Yeast Genetics Meeting recap

by Jessica Lao | October 19, 2018 | Rare Diseases | 0 Comments

The 2018 Yeast Genetics Meeting (#Yeast18) was held in August at Stanford University in Palo Alto. I learned about the latest developments in research and advances in tools and technology, reconnected with former colleagues, and established new connections and...

Perlara’s 2018 Global Genes presentation

by Naz Dana | October 4, 2018 | Rare Diseases | 0 Comments

The Global Genes 2018 RARE Patient Advocacy Summit – one of the key events in the rare disease world – wraps up today. As the largest worldwide gathering of rare disease patients, advocates, and thought leaders, the summit brought together over 100 experts, who led...

Perlara Events – October 2018

by Naz Dana | October 1, 2018 | Business | 0 Comments

Introducing our team members: Kausalya Murthy & Gaby Colmenares

by Naz Dana | September 26, 2018 | Business | 0 Comments

Since the spring, our blog has featured regular posts introducing Perlara team members who weren't a part of the founding team. From recent hires to a long-time team member, from two senior scientists to two research associates, we've covered almost everyone. In our...

UMDF Mitochondrial Medicine 2018 Recap

by Ethan Perlstein | September 7, 2018 | Rare Diseases | 0 Comments

Earlier this summer, I attended the Mitochondrial Medicine 2018 conference in Nashville. Hosted by the United Mitochondrial Disease Foundation (UMDF), the conference had attendees from almost every state in the US, and more than 15 countries around the world. A few...

Perlara Events – September 2018

by Naz Dana | September 4, 2018 | Business | 0 Comments

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