Upcoming Events
IndustryTalk: Developing Cures for Rare Diseases
October 2, 2018
Claremont, CA
Ethan Perlstein will discuss evolutionary pharmacology, and Perlara’s approach to studying old drugs, and discovering new drugs, in model organisms.
2018 RARE Patient Advocacy Summit
October 3 – 4, 2018
Irvine, CA
The 2018 RARE Patient Advocacy Summit, organized and hosted by Global Genes, brings together rare disease patients, caregivers, advocates, scientists and academics, industry thought leaders, and medical professionals to learn, network, and collaborate.
Ethan Perlstein, Nina DiPrimio and Feba Sam will be attending
Mission: Cure & National Pancreas Foundation Fundraiser “Party for a Cure”
October 5, 2018
Los Angeles, CA
Mission: Cure partners with the National Pancreas Foundation to host a night of generosity and fun to help achieve the goal of finding a cure for the children and adults suffering from pancreatitis.
Ethan Perlstein will be attending
Read about Perlara’s plans to model pancreatitis in yeast as a part of the Pancreatitis PerlQuest partnership with Mission: Cure
Models for Accelerating Academic Rare Disease Research and Innovation
October 12, 2018
Notre Dame, IN
An interactive working session exploring how universities can accelerate rare disease research and discovery through innovation, entrepreneurship, and cross-sector partnerships.
Nina DiPrimio will be a panelist
Model organisms for n=1 drug discovery
October 19, 2018
Ottawa, ON
Ethan Perlstein will be the guest at a seminar hosted by Dr. Michael Downey at the University of Ottawa.
Read about Perlara’s work in modeling GNAO1 in yeast, Gaucher Disease in worms, and NPA in flies
“Chemical Biology in the HUB” Symposium
October 22, 2018
Cambridge, MA
This second-in-a-series of scientific talks will focus on cutting edge research in Chemical Biology, from both academic and industry labs, in the areas of targeted protein degradation, chemical proteomics, translational chemical biology, novel target identification and validation, as well as new chemical modalities.
Ethan Perlstein will be presenting
5th Annual “Living Like a Warrior” Gala
November 10, 2018
Scottsdale, AZ
Wylder Nation Foundation’s “Living Like a Warrior” Gala, a night full of inspiration and hope, will raise funds to accelerate the discovery of treatment options for children battling lysosomal storage disorders.
Ethan Perlstein will be attending
Read about Perlara’s PerlQuest collaboration with Wylder Nation to find a cure to Niemann-Pick Type A (NPA)
Recaps
UMDF Mitochondrial Medicine 2018 Recap
By Ethan Perlstein
Ethan recaps the Mitochondrial Medicine 2018 conference in Nashville. Hosted by the United Mitochondrial Disease Foundation (UMDF), the conference had attendees from almost every state in the US, and more than 15 countries around the world.
Look for recaps of the Grace Science Foundation and NNPDF’s 26th Annual Family conferences, as well as a recap of the GSA Yeast Genetics Meeting, on the Perlara blog in the coming weeks!
Industry at Large
NORD Rare Summit
October 15 – 16, 2018
Washington, D.C.
Over 700 leaders from FDA, NIH, industry, patient groups, payers and research institutions will address the “New Era of Patient-Focused Innovation.” Attendees will explore the new and innovative ways in which patients and caregivers are helping drive progress for the rare disease community.
Like being in the know about Perlara team members’ whereabouts and life science industry events? Look for Perlara On the Go at the beginning of each month!
